Disability Blog Carnival #59: Disability and Work

The theme for the Disability Blog Carnival #59 is Work and Disability. It's National Disability Employment Awareness Month. Thank you to Penny from the Disability Studies Blog for co-ordinating the Disability Blog Carnival through 60 issues!

Thank you all for your contributions! All through October, they buoyed me up and gave me food for thought. I felt intense pride to be part of this very loosely knit online community of thinkers and writers.

The next Disability Blog Carnival will be hosted by the fantastic group blog FWD/Forward: Feminists With Disabilities.

• Wheelchair Dancer contributed two posts. In Becoming Disabled On the Job she writes about how even in a supportive workplace there were many obstacles to overcome as her physical capabilities changed over several years.
  
  

  Ultimately, I was successful at my job; I wrote my heart out, presented, won awards, grants, and funding; I got myself published. Technically, however, I didn't get my work done on schedule; in fact, it took me approximately two extra years to approximate a body of work like the ones that my peers had on their resumes. I felt like that broken and imposter racehorse, uselessly gimping around behind its pure blood, beautiful, swift sisters.

  
  
  Her other post, Disability at Work, focuses on her current job as a dancer, where she is not the only person with a disability! "You know that disability is an important factor in your work environment when . . . " Ha! I love it! I'm printing out her 10 reasons why list and putting it up at my office!
  
  
• Sophia from 'sprokenword has an otherwise excellent post which does contain some hatred expressed towards people riding airport motor transport carts who are fat. If you can read around that or bracket it, read on because the post explores some other important issues. In Disability Employment Awareness Month, Sophia describes her job working for a non-profit open source software company while dealing with gait problems, chronic pain, trouble standing, and difficulty walking. Her situation requires quite a lot of travel. I enjoyed this post and have a lot of respect for the difficulties of travel and Sophia's determination to do it. Sophia's post and Wheelchair Dancer's first post spoke to many of the issues that people with disabilities and chronic pain face in professional careers.
  
  
• Alison Bergblom Johnson, from the blog Writing Mental Illness, posted about poetry as work. Anne Sexton: Patient or Poet. Anne Sexton was a brilliant and hard working poet. She won many awards, including the Pulitzer Prize. But in the psychiatric professions she is a patient and her work is considered as pathology - as evidence of her illness.
  
  
• Deborah Kaplan wants to recognize the ways that her job is awesome in working while disabled: it's really just fine. "I could do most of those infamous "activities of daily living" without help if I had too (since I don't think that Congress defines "open-source coding and checking my feeds" as an activity of daily living). But without adaptive technology, I would not have been able to hold a job for the last 10 years, full stop." Her co-workers and employers are supportive. She has some complicated stuff to say about the tradeoff between working through pain and difficulty vs. taking time off and trying to heal and avoid stress. In all that complexity, though, her day to day experience of work is "pretty damn good".
  
  
• Tlönista's post Work/Ability writees about some of the negative aspects of her experiences working and being a mentally ill person. She wonders how much longer she can go on. "Don’t think about the long term, don’t think about the future, treat your life like a sub-prime loan. For now I am a “good” mentally ill person. Not a menace, not a burden. I am functional. I’m so tired."
  
  
• Sashafeather's post, "Disability and Work: What I do" centers on Ursula K. Le Guin's science fiction book about an anarchist planet, The Dispossessed, where the word for work is the same as the word for play. Sashafeather describes work/play as "what occupies a person's time, and what one does with the people in one's community". She does emotional work, self care and pain management, volunteer work for the WisCon feminist science fiction convention, and disability/anti-oppression activism. She moderates several online communities and does creative work in media fandom.
  
  Her post made me think about self-care and pain management as an important part of community work. It's something I have to remind myself of: If I don't deal with my physical pain levels, I will be less useful to the people around me and my community. You might think the motivation of "not being in so much pain" would be enough. Often it's not.
  
  And she moves into very interesting territory in writing about work, disability, and feminism:
  

  I have personally benefitted from the feminist idea of work being a socially constructed idea, and "women's work" such as housework, childcare, and care of the elderly and ill being often unpaid or underpaid and devalued by society. The reason women are paid less than men is because women's work is undervalued. Women often provide emotional support for others, they build friendships, they build communities, they build homes. All of this takes time and effort.
  
  The categories of women and disabled people intersect hugely. The work of disabled people is also devalued, and disabled people face huge barriers such as pain, exhaustion, mobility and cognitive impairments, communication differences, discrimination in the work place and the wider world, and a lack of basic access to buildings, services, and transportation.

  
  
  
• Eva from The Deal with Disability wrote and posted a video of herself at her dogwalking job. Sometimes accessibility is more than meets the eye. She posts flyers for her business at veterinarians' offices and was showing how though she found out she couldn't get into the office there, the staff's attitude was polite and helpful. Eva goes on to point out factors other than steps or ramps that affect accessibility.
  
  
• The spaces in my résumé by codeman38 talks about some of the practical difficulties in getting a job by traditional means. Interviews, transport, and phone calls are not completely impossible for him as an autistic person but they are definitely obstacles. He finds jobs through friends and family.
  
  
• Tera from Sweet Perdition writes about her job at a local game store: I am Lord Voldemort. She works for store credit at a job that her college professors would consider below her capacity - but she loves her work and their appreciation of her.
  

  Sometimes you think about getting a proper job, one that pays you money or, at the very least, requires you to leave the house, but you don’t want one. You realize that you don’t really want a lot of things that you’ve grown up hearing independent adults must have . . . But all this guilt is just society’s poison coursing through your brain; it isn’t you. The things you want–really want, not just think you should want in order to be a real person–are not the things your culture wants for you. Popular culture doesn’t have many models for the kind of person you are.

  
  
  
• Cheryl from Uppity Crip has two posts to contribute. Heads up that her blog has music on auto-play. 51% of Workplace Accomodations Cost Nothing and Mental Illness is Still a Big Stigma.
  
  
• I posted on BlogHer.com on Working Women With Disabilities. I was feeling exhausted and disheartened, and wanted to see other people's thoughts on working and being disabled. My own thoughts on the subject are going to take me a while to put together. When I post about my personal experiences with losing jobs, struggling to get SSI, working part time, passing as able, going back to school, and access issues on the job now that I'm working again. I'll link to it from the comments on this post.
  
  
• Wheelie Catholic posted many times in October with Disability Awareness Month in mind. Her posts are great!
  
  * The Top Ten Ways For Managers to Screw Up under the ADA
  * Sears case largest disability related employment discrimination settlement
  * National Disability Employment Awareness Month: What Can We Do?
  * PBS to Air Film on Disability Advocates
  * The Campaign for Disability Employment: whatcanyoudocampaign.org
  * Disability Awareness FAIL - this one is hilarious and awful!
  
  Late additions:
  
  * Video Post from Bev from Asperger Square 8.
  
  

[ETA: warning on fat hatred on a link.]
[ETA again: I phrased that badly and i think misinterpreted sophia's words to be about scooter users. By carts she meant people who are riding the electric carts that airport employees drive around to pick people up. See comments on this post for my thoughts. - Liz 10/28/09]

Thank you all again for clueing me in to your amazing writing. And thanks for reading!

Please stay tuned to FWD/Forward for the next Disability Blog Carnival call for contributions for Carnival #60!

ADAPT in Atlanta kicking ass, taking names

This weekend I went right from the Blogalicious conference in Atlanta to the end of a march and start of a rally that kicked off a week of activism by ADAPT.

Their goals are, free people from being incarcerated in nursing homes, and kept in there against their will. They back the Money Follows the Person program, which means a person's benefits are under their control rather than under the control of doctors, social workers, and assisted living facilities (who are a powerful medical-industrial complex much like the prison-industrial complex: powerful lobbyists with a lot of money at stake.) Right now ADAPT also supports the Community Choice Act, a bill which you can see and follow directly with OpenCongress.org.



I hopped out of a taxi with two backpacks hanging off the back of my wheelchair, tired enough to cry but feeling jet setty, determined and super excited, as if going to the crip activist prom. As I rolled up an exhausting hill to the Martin Luther King historic site and rose garden. Hundreds and hundreds of disabled people and others were there. There were some songs and short speeches. There seemed to be three or four main organizer dudes, 70s looking older white guys. I gradually realized everyone was in groups based on the color of their tshirts.



I have not been involved on any level other than donating money to ADAPT and though I write about disability online a lot I don't get to hang out with anyone really and I miss that enormously and need some solidarity. So I was so grateful just to be there for a while with everyone. I wanted to stay and support the goals of the organization to get government officials to change policies, get people out of forced institutional living, and embody our political power with direct action.

But I'm also going to frankly tell the story of my afternoon and my thoughts.

First, here is an ADAPT logo and a link to their donation page.

DONATE!!!

Follow NationalADAPT on Twitter
Follow Michigan ADAPT on Twitter

Here's a short speech by Lois who says "Free our brothers and sisters, free our people."



I enjoyed the small bits of chanting we did. How do you spell power? A-D-A-P-T! However I have been in enough rallies in life that I never want to yell "The People united will never be defeated" again. Did it anyway in the heat of the moment. But I draw the line at "Hey Hey Ho Ho." A person has to have some boundaries. Hah!

Andrew Jones speaks about getting out of an institution with the MFP program which has now been denied funding. I missed videoing the second bit of his talk, which was fantastic (my camera ran out of batteries just then.)



Later that afternoon I went to shake Andrew's hand and tell him I'd upload the video of part of his speech, and he raffishly explained to me that I was a rather attractive and curvaceous young lady. Thanks, Andrew, but LOL that was some quick work, how about making friends first, also, actually I am 40 and prideful of my mature charms and middle aged wisdom. You are certainly silver tongued though and should get on email. It would work for you.

Thank you ASL interpreters. Y'all worked so hard. And thanks ADAPT for structuring that constant side by side translation.



So then, there was a sort of extra staged bit which I had mixed feelings about, keep in mind I am a total outsider to ADAPT so take it all with a grain of salt. Delores Bates and Kathy and Bodie came up to the front of the rally and did not speak but the main organizer guy told Delores' story of being in an institution for "seizures" for the last 43 years. She just got out, I guess with ADAPT's help, this September, to live in her own place. IT was her 57th birthday on the day of the rally and they presented her with a birthday cake and a giant card with lots of signatures. We all sang her Happy Birthday. It was her first birthday on the outside in 43 years.




So, okay, I cried like a baby, but I also was like "So, fucking give her a piece of her own cake then? Also, what she have to say about it if anything?" And felt it was a bit stagey and poster-childy. I talked with Delores a bit afterwards and asked her if I could take a picture, she smiled and nodded and I showed her the photos in my camera for a bit. I wished she could talk with me. Thank you Delores for contributing your story and your birthday moment to ADAPT and all of us in the crowd. Congratulations on getting out.



I wondered what happened next and I imagined again her having email and showing her Eva's The Deal with Disability blog entries so she could totally crack up laughing. And that she could have a Facebook page and people could donate directly to her if they wanted and if they cried while singing her Happy Birthday rather than it being sort of showcase for ADAPT, though I also felt like ADAPT probably does right by her and she might be happy to donate that publicity about her life for the good of others. Basically I had my little social media empowerment fantasies and started making real life plots to go to nursing homes in my area and implement my idea to get them online with wireless and take it from there. More about this later on Hack Ability.

Here are some scenes of the people and the crowd.













I saw my friend Bethany and was very excited! We were on a panel together at the Sex:Tech conference. Then wandering around for a while I introduced myself to some women named Naomi and Joanne. They were very persuasive trying to get me to stay. I thought about calling work and begging for time off without pay, and trying to find child care, and seeing if I could change my plane ticket instead of leaving that night. Would it be possible? I considered just "accidentally" missing my plane and finding a place to stay overnight. But I'd have to accomplish all that in something like 2 hours and I didn't want to let my employers down or my family. If only I had planned to stay.




Then people took off up the big ramp out of the park and up another hill to Park Manor nursing home, right next to the Rose Garden. I asked a guy to hold my hand and pull me up the hill. (Thanks!) We all marched and rolled past and waved. The Older People for Community Choice stayed outside the windows with a big banner, waving, till the end of the parade.



Now here is the "Stay on the Sidewalk" bit, where I rant at length!

As I rolled down hill at the tail end of the march I made friends with a guy named Tali and soon we were deep in discussion about disability rights politics. Over the next few blocks we kept getting yelled at to get into single file. The march went on and on and Tali started to give me a lift - I hung onto the side of his power chair so he could pull me (and my giant backpack) up the hills (which no one who isn't in a manual chair would even think of as "hills"). We were all in the middle of the right lane of the road. Basically I don't react well to senseless orders and I'm proud of my capability to land in a strange city and get around. Also, i know how to cross the street but at every intersection another person usually one on 2 legs was screaming at me through a megaphone to keep up. This one older lady behind us in a power chair was very, very upset that Tali and I were not following the rules. I was half a lane away from the part of the street that was open to traffic and at no time was in any danger. What I think happened was a vicious cycle of this lady's instant judgement of me as a spoiled bratty child of privilege who needed to be controlled. And this kicked in all her officiousness, which in turn pushed my buttons big time so I refused to do what she said. As disabled people (or people in general) we are not served well by doing what we're told without using our own judgement. By the end of the march I was not only so mad I could spit, I was ready to go get hit by a car just out of spite. If not rolling up huge, horrible hills, being yelled at every inch while I was deep in talk with Tali, I would have liked to have a good heart to heart talk with that lady about authority, privilege, hierarchies, rules, race, disability, internalized oppression, and so on, and I mean that sincerely. Instead I lost my temper and just kept yelling No, leave me alone. The worst moment was when she decided I was too far back at the end of the line of the parade and she started yelling for someone to come and push me. "We've got a manual wheelchair here who needs a pusher" And that sent me over the edge of rage to be referred to like that. I also fight very hard to be independent in big and small ways. So it pisses me off that someone else thinks they get to decide when I need "help" which in this case would not have been help. Tali and I were cussing everyone out loudly and yelling No sorry don't need help we're anarchists. I also had some commentary from walking organizers in orange shirts about "how well I was doing"... thanks but shut up, that was a patronizing and unnecessary thing to say.

The thing is, i've been an activist and organizer for years and I know how to organize a march or parade, I know you have to get permits for it and work with the city and the police, I know how to block traffic as safely as possible, and I've been to many rallies where there are guys barking orders through megaphones at people who don't need to be ordered around at that moment, because they panic a little at being responsible and in a position of authority, and so they have to go around displaying it, because they're worried and need the feedback and reassurance that their authority is *working*. I would like to tell those guys to take a chill pill. Unless it is an actual crisis situation, you are not helping, you are just training people not to think for themselves, and causing a reaction of confusion and resentment. And in an actual crisis situation, it may very well NOT BE YOU with the megaphone and orange vest who keeps a cool head and exhibits leadership. To be overly generous, there is the opposite kind of asshole in rallies with a black bandana who is just there to fuck shit up and set a newspaper vending machine on fire and they can also kiss my ass. And I'm not that kind of asshole, i'm the *journalist kind of asshole* and also one of those rogue computer people. In any situation I look to whoever is sane and making sense and being effective. If the most sensible person there is me, then I lead. In a situation where I have information that shows that it is best for another person to lead and coordinate and there are rules that make sense, then it is best for me to go with that. That, for people fighting for "empowerment" should not be hard to understand.

Here's how I felt about it at the time and Tali too....



LOL!!!

Tali especially since he was put into a different "color group" as Bethany who he had specifically come there to meet as his one friend at the march and then a bunch of organizers wouldn't "let" him sit with her since he had the wrong color tshirt on or something. Um. !!?? What possible purpose could this serve. We were told over and over again that people were trying to PROTECT US. What's wrong with that statement should be a bit obvious.

Now if it is directly going to contribute to saving someone's live or helping us not be harmed in some way I can shut up about my personal dislike of orders and my special snowflake self and rights, and be dutiful for common good, but this was NOT THAT MOMENT.

Near the end of the march back I ran into my blog friend PhilosopherCrip,



I adore him!

We spoke super briefly and he sized up my state of mind and I think, in a post later, actually partly answered it by explaining ADAPT's organizational philosophy and how it goes into military organization mode during Actions.

Now, when folks refer to ADAPT as the “militant” wing of the disability rights movement, they are more accurate than they may realize.  To some degree, ADAPT’s organizational structure is a representative democracy as actions are being deliberated and planned.  However, when the wheelchair tire rubber meets the road, we turn into a highly authoritarian, quasi-militaristic structure, complete with chain of command and an expectation to follow orders exactly.  This has all been a matter of reflection for me (particularly how trust relationships operate within a direct action activism structure), some of which will hopefully find its way into a future blog entry. 

I appreciate that explanation very much and it goes a fairly long way to quench my irritation. However I have a meta irritation which is that a lot of the people at the rally might not have the luxury of being irritated or going off like I could to do their own thing. There was not good information passed out to people. A lot of people don't have independent means as far as money. The pace of activities was brutally fast. I was increaasingly conscious of my own extreme privilege relative to others there. I could at any point just call a taxi and go wherever I damn pleased. So I could criticize the leadership all I wanted. That is not a good feeling, it's not right or fair, and to me is a sign something is not right in a power structure. I was like, damn, I'm even more happy for my job because it means i'm not subject to being grateful to these officious do gooders to boss me around while they're "helping me" "for my own protection".

When I'm getting arrested or facing some pepper spray then I appreciate organization but being "protected" from the simple act of wheeling down the street next to my friend ... no thanks.

As an amateur leader myself in some situations I would advise other "organizers" to cope with loose cannons like me by valuing their capabilities and not trying too hard to rule over them in the small stuff. It backfires. Just let them do their thing and then when the time is ripe, co-opt them. (LOL AGAIN) (I say this mostly to make Joe/PhilosopherCrip crack up laughing)

And as I bitched about this to my friends a lot of them said "Yeah, that's why I don't really hang with ADAPT, that stuff turns me off."

That is too bad and it's feedback that should not be dismissed.

On another level of meta I would question whether the organization has a fair amount of military veterans in it who perpetuate their drill sergeant style and somewhat out of date organizational tactics. We should be empowering each other with information and two way access to public discourse in ALL WAYS so that we can act collectively in a swarm-like fashion. What y'all need is flash mobs, not paramilitary squads and cells.



I really do respect all that ADAPT has achieved and does!!!!

But check what you're doing and listen up. Many aspects of the rally and march reminded me of my dealings in the Houston Astrodome during Katrina with the Red Cross officials vs. the rogue anarchist computer people. And I want to tell you that what on some level what got people the hell out of that refugee camp was information and connectivity: phones and email, myspace and facebook and search engines and the web. Not Professional Organizers and charity and hierarchical leadership that hugs information and power tight to its chest. A flow of information means that people can make decisions and act together. You all need some wing of your organization that works to those ends too.

Anyway, at the hotel, I actually used my privilege to take our asses to the hotel bar and have a much needed beer and sandwich in the 20 minutes before I had to catch a taxi and plane out of town. The bar waitress was SO nice and saw I was looking for a power outlet to plug in my laptop, and she brought me my sandwich to go so I could eat some of it and take the rest. She was completely unfazed by our wheelchairs. Omni Hotel, you rock. Bethany and Sara and Tali it was the highlight of my trip to get to hang out with you.



So I flew off literally sobbing with my desire to stay there and be in the week's actions despite my rant about power structures and being yelled at, so ready to go for it.

I resolved to donate my week's salary and to exhort other people all week to donate to the cause either by directly helping someone out or donating to ADAPT to support their actions and organization.

Would anyone out there like to match my donation? Email me, lizhenry@gmail.com, or comment here.

The next day I woke up at 5am and began following what was happening in Atlanta. All day throughout work I could not stop thinking of all of y'all in Atlanta, cheering you on over Twitter, I worked to post and tag all my photos and videos as fast as possible as the only contribution I could make remotely.

What you all achieved and are doing today is so beautiful. Congratulations on getting into the Governor's office, HUD and HHS and making top officials agree to meet right then and there and begin negotiations. So smart and so effective. You got a response and got the politicians to listen and take our power seriously. YEAH. (And direct action and the threat of an endless sit in or hundreds of us dragged out in handcuffs, ie, PR disaster, IS WHAT IT TAKES. RIGHT ON.) Good job with the talk of timelines and scheduling a series of committee meetings. Please, report on this in as much detail as you can on the net. And to report on it ASAP so we know what's going down. A lot of us are watching and putting our trust in you right now to represent our interests.

Thanks for listening. Also, thanks to Nick Dupree for letting me know about the rally and actions in the first place (last week on his blog). Now, anyone who read this who can afford it go and donate. Consider trying to get your employers or family or friends to donate as well. And, go read up on the other posts in Nick Dupree's ADAPT Blogswarm !

A decent airline experience for once

Flying while disabled often tries my patience. Today's experience on Delta was actually decent. I'm so surprised. Though I missed my flight the ticket agents got me on another one a few hours later. The guy in the pink tie was especially nice. At the gate, no one hassled me, but one of the agents came out, crouched down next to my wheelchair at my level, and discreetly talked to me in a way that was just like two human beings talking. That's rare. She asked about an aisle chair, if I needed anything, if I wanted to board first, and gave me a gate tag, without lecturing me what was going to happen and what I did wrong or acting freaked out or being condescending or hostile. Nobody talked about me in front of me like I wasn't there. No one grabbed or pushed me. Yay!

I noticed the people working for the airline were mostly dressed in jeans and tshirts and sweaters, which I also kind of appreciated and which maybe contributed to their acting decent.

I got on the plane, one of the agents carried my bag on, and no one fussed or acted like I had two heads. (If you actually do have two heads, I apologize for my mono-headular-centric language...)

They also put me 2 rows from the plane entrance and bathroom. There is wifi on the plane (though it's only free the first flight.)

Really not bad. I think it speaks more to the horrible experiences I've had with other airlines (see I am not the wheelchair or Why is airline travel so brutal for disabled people? ) but since I've blogged so negatively about airline travel, I'd like to show that it's not all about the fiery complaining over here, and give Delta some props. Get it... "props"?

Thanks for not sucking. Meanwhile, I got some work done with the free wi-fi, and I'm excited about being in Atlanta for Blogalicious Weekend, for women bloggers celebrating their diversity and so on (representing BlogHer, where I work as a web producer and developer). I'm also really excited that I'm going to get to participate in some of ADAPT's actions on Sunday and for that I'll be participating in Nick Dupree's ADAPT Blogswarm and will, I hope, interview some folks about the Community Choice Act to end institutionalization for people with disabilities.

A dose of morning rage

This morning on my way to work at the busy intersection near my house, I passed some firefighters holding out boots to collect spare change for "Jerry's Kids". How much do I hate this? Do these people have the faintest clue how hideous their actions are, how dehumanizing, how much they set back human rights and disability activism?

My blood boils and I wanted to stop the car, get out and scream at them. Their good intentions are no excuse for their ignorance.

Sorry but I have no patience to suffer these fools or Christopher Reeve's whole thing.

Anyone in need of some education on thse points can go read

* Jerry Lewis, Oscar-sanctioned "Humanitarian". The brilliant journalist and blogger Laura Hershey tells it!

* Jesus Christ, We're Screwed - Bad Cripple's take on Josie Byzek's take on Obama's speech to disability activists

* Ragged Edge's explanation of some of the background of activism against the Jerry Lewis Telethon and its mentality

* Jerry Lewis vs Jerry's Kids - infamous "living waterbed" statement

* Bigotry towards people with disabilities

If it’s pity we’ll get some money. I’m just giving you the facts. Pity … if you don’t want to be pitied for being a cripple in a wheelchair, don’t come out of the house.

I could go on, and on...

If you want to support people with disabilities how about keep your spare change or your Telethon donations in your pocket. Instead go support what people with disabilities actually say they want and need to have an independent life.

Like the Community Choice Act!

Which I wish the Obama administration would talk about a bit more. I agree with Bad Cripple here:

What did I get out of Obama's speech?Obama wants to cure crippled people, hence he talks about Reeve and better medical care. At no point is any mention made that most people with a disability are uninsured and cannot afford health care. When obstacles are encountered in the post ADA land of nirvana the super cripple will overcome and persevere. How does he know this? Obama's father-in-law woke up early and made sure he had time to button his shirt and still get to work on time. He even struggled to walk up the steps of his home with two canes. Some how I think this was the least of his problems. Obama's words were not inspiring stuff but damaging stereotype. As Obama spoke I wondered what happened to his support for the Community Choice Act? This surely would have helped his father-in-law. No mention of this legislation was made, legislation he now supports in theory but it is off the table when talking about health care reform. Obama did not say a word, not one, about the current rate of unemployment among people with a disability. When the ADA was passed 19 years ago the unemployment rate was 70%, today it is 66% Surely we can do better in almost two decades.

If you need any more "educating" go read Nick Dupree's blog and also bookmark Blogging Against Disablism Day from this year or past years and read them every once in a while, I promise your perspective will change.

And, a personal Fuck You from me to Jerry Lewis.

Immediate housing needed in San Francisco

K. and her three kids need a small apartment in San Francisco as soon as possible. A one bedroom apartment would work. They're looking for a rental or sublet through September, when they have housing lined up.

K. was the victim of domestic violence and called shelters in SF for months and months, to be turned away and told they don't have room, to have intake workers promise to call her back and then never call, to be told over and over - NO ROOM. Call someone else. Government and non profits, passing the buck.

A San Francisco blogger, Tangobaby, has been helping K. by telling her story, gathering donations and help from blog readers, and calling all over the city along with her to try to find resources and help. It sounds to me like they now have enough donations to pay rent on a place. In fact, at this point they could pay the entire summer's rent up front. But they are having trouble lining up a place to live.

What would you do if you were in her situation?

Think about a time you have had to go apartment hunting. And the uncertainty on - how is the landlord judging you? Now do it with 3 kids, one a 2 month old baby, while you're homeless. And while you're not white. Racism plays into this difficulty, I have no doubt of it.

I would like to propose that anyone who reads this who is in SF, contact anyone you know who owns a rental property. Talk to realtors who might know of landlords. Pull whatever strings you can to help out and contact Tangobaby if you have a good lead on a place to stay. And, here's a wild idea. Might someone who might have an easier time renting, or staying with friends, or travelling - might they move out of their own apartment and sublet to K. and her kids for the summer? Or might someone with a big apartment who needs a roommate, take a roommate with 3 kids including a baby? Think about it, and seriously, ask the people you know if they can help.

ADA struggle at my workplace

It has been at a year now since I first started asking the office building where I work to add disabled parking spots. They continue to refuse, and as I continue reporting them to the city, they continue coming to my managers at work to complain about me. I consider that to be very wrong. It is retaliatory action for my asking for accomodations and reporting them to Code Enforcement when they did not respond.

I spoke several times over email and in person with the building manager last year. I spoke with city code enforcement. I continue having to speak about it with people at my workplace, because of the repeated harassment from the building manager. Last year I also contacted a clinic manager at Palo Alto Medical Foundation, another tenant of the building, who I believe should be actively involved in protecting its patients and who I would still like to invite to a part of the solution.

I am a blogger. That means that some of the time, I'm a citizen journalist. When I get stuck, I can always go public. That's what I'm doing. Private conversations on this issue have not gone well for me. People lie and stonewall, and I get put on the spot, I end up being the one under scrutiny. That is wrong. I am not the issue, and I am not the problem. I have been polite and helpful over the course of a year, in pointing out ways the building owners could deal with the issue, I made specific requests, sent links, explained tax breaks available that would help pay for the modifications.

The initial contact with the building managers last May resulted in this:

The building is able to offer much needed medical space to the community without opposition from the city; "currently". We are not a medical building. As you know, the building is required to have a specified number of handicapped parking space in order to meet the standard set forth by the ADA. We have the required number of spaces and no plans currently for adding more.
(from Lauren from Harvard Investment)

Then a lot of messed up things happened. Frank from Harvard Investments came to speak to me in my office. He made many claims about his boss's political friendships with city government, the good that he does for the community in being a landlord of medical office space. He said that if I kept it up, he would make sure nothing happened, he'd drag his feet and "nothing would happen for 10 years and it would just cause trouble for me in the meantime." In a whirl of alternating threats and pleas for sympathy, Frank then made increasing claims of empathy because his grandmother "was in a wheelchair" and he was too during his teenage years. He went into quite an emotional story about his life as a teenager in a wheelchair, wistfully watching the other kids play ball and have fun; the emotional pain he suffered from as a result making him uniquely able to understand "my pain". I did not believe him, and questioned the relevance of his stories and claims. My personal emotions are not the issue. The law, and what it does to help our city's community, and -- for me personally -- my solidarity with other disabled people: those are the issues.

I refused to speak with Frank after that conversation. But I described it in full in an email to my co-worker.

Here is my first letter from last year, after some phone calls that didn't seem to go anywhere. I sent it on May 15, 2008, to the Redwood City Code Enforcement head, Fereydoun Shehabi.

I am a wheelchair user, and I work in an office at 805 Veterans Blvd. in Redwood City. The building has quite a lot of traffic from people with disabilities and elderly, frail people in general, as it hosts large offices from Palo Alto Medical Foundation and other doctors. It has over 280 parking spaces that I counted, but only 3 of those spaces are marked blue as parking for disabled people.

Those spaces fill up quite often. They are not wide enough to allow me to park in the space next to another car and still get my car door open wide enough to pull my wheelchair out of the car, out of the side door, and pop the wheels onto it. The 60 inch between spots with striping, that should be there, is not there.

The building has a central lobby with two large and accessible entrances with automatic doors, one facing the east parking lot and one facing the west lot.

According to the ADA as I understand it, there should be at least 7 spots, evenly distributed around the accessible entrances, and one of those 7 spots should be van-accessible with a 90 inch wide area.

The three existing spots are on the east side of the building, the back entrance bordering on Main Street. Some of the spaces near this entrance are painted red and marked "reserved, private ". The red paint is fairly fresh and appears to be painted over blue paint, though it is somewhat difficult to tell. There is a very nice wide curb cut here.

At the front entrance on the west side of the building that faces Veterans, there is another excellent, wide, curb cut. But, all the spaces nearby are painted red (this time, obviously painted over blue) or gray, also clearly cracked and with blue paint underneath.

I have asked the property manager, Frank Ramirez, twice in writing and once in person to restripe the lot.

He refused to do so and said that the owner is friendly with the Redwood City planning commision. He claimed that it would be too expensive, and that he and the owner would fight any such restriping and delay it for "10 years". I am asking him merely to add some extra spots by the west entrance. I see that the owner is afraid that he will have to tear up landscaping, sprinkler systems, trees, etc. in order to make a wide walkway in front of the spots. I hope that is not necessary and there is some middle ground between that complexity and expense, and doing nothing at all.

At first, Frank Ramirez stated that the building was in total compliance with the ADA. Later, in person, he admitted that he knew it was not, but that they had a special exception in a permit from the city.

I doubt this is true. It looks to me like the building owners had the minimal amount of disabled parking spaces in the past. And at some point, they painted them over for "private use" or as regular spaces.

Frank Ramirez also offered me a "private parking space" if I would stop asking them to comply with the ADA and if I would drop the issue.

I did not feel that is what is best for the community.

Frank also said that the medical clinic is good for the city and community. Yes - but not if someone in a walker gets run over in the parking lot because the owners and the city did not follow the ADA.

Attached is the permit for the building from 2005. The city planner on duty emailed it to me.

Best,

Liz

In the interim, Frank Ramirez in person told me that if I pursued the issue with the city or an ADA complaint, I would force the property owners to terminate their agreement with PAMF, and the City of Redwood City wants to have the PAMF medical clinic here to serve the community, and if I pushed things, I would drive out the clinic. Did I want, Frank asked, to be the person who took away health care for the disabled and elderly people of my community that I was trying to help? This argument by Frank hardened my resolve to continue to pursue the issue.

I wrote another round of letters in I think August or September but lost them in a hard drive crash.

A couple of months ago I opened the issue again with the city to ask why they hadn't done anything and got this response:

I recall our last phone conversation regarding your complain. Following
your phone call I had our senior inspector Jerry Schnell to come to the
site and verify the location of disabled parking stalls. He reported to
me that there are several disabled stalls scattered on the site and he
noticed there were two stalls near the main entrance and one in the rear
near exit door. I also called the manager with the phone number that you
provided to me and left a long message requesting for a response but to
no avail.

So the city did not properly inspect or respond to the complaint. Jerry Schnell did not report or take action on the obvious code violations in the parking lot. Nor did he look at the rest of the building; for example, in the lobby the fountain's overhang over the walkway without any indication for a cane is a hazard for people who are visually impaired. Why didn't the city take proper action? Was I being stonewalled, as Frank Ramirez suggested, because the city has a private and friendly agreement with the building owners, basically a golf buddy arrangement? Was Jerry Schnell just unable to do his job correctly? Where is his written assement and report of his inspection? Why didn't Fereydoun Shehabi pursue the property owner's failure to respond to his voicemail?

Why doesn't my city have a clear procedure for its citizens to file such complaints and receive proper consideration and follow up?

I love my city and yet I am now in the position of possibly needing to sue them as well as the building owners, under the ADA.

Why hasn't PAMF management, or any of the doctors who work there, ever noticed and done something about the disgraceful situation that means its own clients and patients can't park safely?

I am not the problem in this equation. No one should bring me into it. No one should call my workplace, my company founders, or my manager. My workplace should not engage in a battle with their landlord or with me over this issue. The issue is not ME. And the issue does not involve them. The issue is, very clearly, that we have a law, the Americans with Disabilities Act. And we have agencies to enforce that law. The building owners are in knowing and active violation of that law. The city failed to enforce the law as they should have.

The building owner needs to fix the problem correctly, and can file for a tax break of up to $15,000 to cover the removal of barriers. There is nothing that says they have to bring everything in the building up to code in a perfect way. But they are required by law to do barrier removal that is readily achievable.

As I look over one of the two documents I have in my hands for this case other than emails, the Feb. 14, 2005 letter from the Planning Commission to Jeffery Teel from PAMF, I can see that the building owners and the city agreed that it is the building owners' responsibility to make many other modifications to the property, such as an accessible and safe path from the city sidewalk to the building entrance. In other words, if you take the bus here, or get here from CalTrain, you can't get to the building entrance without being in the large parking lot and driveways that open onto an extremely busy street. As I know well from trying to go to lunch with my co-workers who simply walk through the parking lot and over the landscaped hill, while I at far below safe eye level for drivers go the long way around through the parking lot. I tried that a couple of times. I saw how unsafe and scary it is. Now I get in my car and drive if I am going to go across the street for lunch. My point is that the building owners know they are supposed to do many things to be in ADA compliance and they have deliberately avoided doing those things to avoid expense despite their contractual agreement to do it.

Here is the report from the City Inspector from Febrary 12, 2009, when one was finally filed in response to my repeated requests for action:

Inadequate disabled access parking stalls.

I haven't seen any response or action from the sending of this letter. But I am very happy to have a copy of it, and grateful that Fereydoun Shehabi sent it to the building manager. I would like to point out that he missed a few problems though.

I am not gearing up for a civil rights battle to demand my personal right to a safe parking spot. I am asking for my community members sake too. And actually I am doing it to demand my right to ask for a reasonable accommodation without the property manager repeatedly harassing me at my workplace by complaining about me to my bosses and throwing the problem back into my lap. More than my rights under the law about parking, I want my rights under the law to protect my employment. That includes protecting me from harassment and retaliatory actions.

I will call PAMF again tomorrow to ask their management and their clinic doctors and patients to join me in an ADA complaint. I will also ask everyone at my workplace to send in the ADA form which I will print out and bring for them. I don't know if I'm going to fill out the form correctly without help from a civil rights lawyer, but I'm going to try. Acting individually, and asking nicely for people to obey a very clear law, and explaining all my reasons for doing so, has not worked. I conclude that only organized political action brought to bear will have any effect in this situation.

If you are in a similar situation, I recommend that you organize political action rather than sending letters every couple of months and trusting that something would happen. Because unfortunately, other people can be greedy and corrupt even where the law in theory protects us.

And if you are a property owner, I recommend that you listen to people who ask for reasonable and readily achievable accommodations, and negotiate in good faith to improve your property.

Infrastructure for civil service

I have drunk the Koolaid.

I'm so excited to see the change.gov site. Mandatory civil service, I expected. But this goes way beyond what I hoped. This could mean real participation in government. Activism - real activism but built into our government - mobilization of people who have the most time and energy, not through churches and charities but through an organized infrastructure for nationwide civil service.

The Obama Administration will call on Americans to serve in order to meet the nation’s challenges. President-Elect Obama will expand national service programs like AmeriCorps and Peace Corps and will create a new Classroom Corps to help teachers in underserved schools, as well as a new Health Corps, Clean Energy Corps, and Veterans Corps. Obama will call on citizens of all ages to serve America, by developing a plan to require 50 hours of community service in middle school and high school and 100 hours of community service in college every year. Obama will encourage retiring Americans to serve by improving programs available for individuals over age 55, while at the same time promoting youth programs such as Youth Build and Head Start.

People will put in work they can be proud of. Rather than accepting help shamefully from "charity" everyone can be part of building communities and services. I think of the short but intense time I spent helping with Katrina relief in the Astrodome in Houston. And the moments when authority decreed and doled out, and the depression that caused, vs. the moments when people had the tools at hand, the resources, to organize themselves.
These volunteer corps will build structures where that work is respected, where it will lead to experience and self confidence and paying jobs for people.

I'm heartened by the Obama administration's apparent respect for people with disabilities, teenagers, and senior citizens.
Look at this. It gives me chills. I keep looking at it and crying with happiness. I believe it. Agenda: Plan to Empower Americans With Disabilities.

First, provide Americans with disabilities with the educational opportunities they need to succeed.

Second, end discrimination and promote equal opportunity.

Third, increase the employment rate of workers with disabilities.

And fourth, support independent, community-based living for Americans with disabilities

YES!!! Someone GETS IT.

Thank you.

I think of all the fantastic people I know online who are living with disabilities and who contribute so much to society with all their intense, hard work. Work that is not recognized as such. They don't need charity or a hand out they need decent health care and for their talents, knowledge, and work to be respected. This administration really could lay out paths for that to happen.

Look at the goodness of the change.gov site. It's savvy, it's well built, it was poised for launch. The organization of the Obama campaign convinced me deeply of this coming administration's competence &efficiency, & their ability to use technology with good common sense. That convinces me too.

Take the things that are GOOD about the military, the Army, and make a decent U.S. Civil Service Corps where service is respected, turn all that to the power to build rather than destroy. Making things better isn't the job of corrupt profit-based corporations or punitive institutions, or the prison-industrial complex, or religious-based "charity models" -- building and maintaining our country is the job of government, which is - or will be - everyone's job.

Reading in Seattle this Friday, Apr 25

Liz Reading at Queer Open Mic
Originally uploaded by Liz.

I am road tripping up to Seattle this week! If you are there please come see me at this event ! I would love to see you all and would love the support. April 25, 8pm, Annex Theatre, 1100 East Pike Street.

You will hear me say the word "Lezzie" in a Texas accent. Also, I promise to wear leather pants. There will be bubbling, and silliness, and insane talk of poems and roadside geology and the roots of the Klamath Mountains. I will pop a wheelie for you and you may pat me on the head and tell me I am brave (JUST KIDDING about the patting).

I will not have my child with me, but you can bring yours, as long as you keep them out of the bar area and don't mind them hearing some intense stories of playground bullies and maybe some cussing, plus you realize my story is about being queer, queer, queer. All the stories are AMAZING and are written about elementary school and early middle school experiences & with that audience in mind!

Get info & buy tickets here: Can I Sit W/You reading

Tickets are priced at $5 and $12, which means you can choose how much to donate. Money all goes to my hometown Special Ed PTA.

April: National Poetry Month. Post 1: Nestor Perlongher in translation

a
Originally uploaded by Liz Henry

I'm going to try to post every day in April on poetry and poetics. This blog has got some poetry in it, if you dig deep underneath the feminist eyerolling and disability rights and tech stuff.

In the last month, I've been going through my translations and poems from the last 10 years. My work schedule has been light - I am contracting, half-time. And there's a huge backlog of writing which I just never bothered to send anywhere, and didn't blog, figuring I'd send it out later. So, while I send these translations out to journals and publishers, I'll be focusing here on describing work I like, or going through some of my own work.

That sounds boring I'm sure, but let's start with a bang and talk about something super dirty. Let's descend into the mire!

Today I thought about my translations of Nestor Perlongher's poems. Nestor was an Argentinian gay rights activist, sociologist, and poet who died in the mid-90s. He lived in São Paulo for much of the 80s and 90s, and wrote in a mixture of Spanish, Portuguese, and Portuñol, with a little bit of gay street French thrown in. I have read a fair bit about the Argentinian Dirty War. A few years ago, I heard an mp3 of his long poem about the the disappeared, "Cadaveres". It blew my mind. I translated that poem and looked further on the net for his work. Not much was available, but what I found blew me away even more. It was weird, radically messed up, dirty, and queer as hell. It was difficult, disturbing, and beautiful.

Someone said the word "untranslatable" in my hearing. You know what happens next!

Perlongher was a sociologist who studied gay and transsexual street hookers in São Paulo. Wow, did he ever study them.

I am somewhat aware of the activism and politics around global human rights for queer and transgendered people. For example I have read plenty about human trafficking from Brazil to Europe and the U.S. and about the questionable safety of some of the more risky surgeries you can get done in Brazil (and elsewhere in the world). And I am somewhat aware as well of the cultures and communities of trans and queer, transvestite, drag queen, cross dresser, intersex, genderqueer, transsexual, and all that sort of thing in the U.S. There are some interesting differences between how trans people are viewed here vs. how they are viewed in much of Latin America. I set out to learn a bit about that, and did some reading in libraries and on the net as a background to translating Perlongher's poems. It seems to me in many ways that queer urban culture is more global than I knew or expected. Like house music, like the transcendence of Frankie Knuckles, Perlongher's genderqueer hookers would be at home in San Francisco or Chicago, Paris or Bangkok, as much as in São Paulo. And you have only to be even vaguely queer, to listen to Perlongher's voice reading "Cadaveres" in that mp3, to go pretty much instantly, "Okay, that is a gay man talking." If you think about gaydar, going across languages, it is pretty interesting.

Meanwhile, I was reading a bit more about the neobaroque (neobarroco) and neobarroso movements in South America and Cuba.

The poems themselves. What do I mean when I marvel at their spectacular dirtiness? It is hard to describe. They are slippery and pornographic. If you are my mom or something, just stop reading now, because I am going to describe the poetics of cocksucking. There is a pervasive sense of shifting ground, of a moving frame. A phrase will link to the phrase above it and mean one thing, and mean something else on its own when your reading-frame hits it and isolates, and means something else when linked with the phrase that follows; and again in the context of the whole poem, as a flickering impression or kinematoscope, layers up to create a general atmosphere, so that without actually having said the word "cocksucking" or "cum shot", you realize that is what you are reading about. Everything is sort of glistening and sticky. You think of glitter, flouncing, dive bars and back alleys and strip clubs. Celebratory sleaze. It's all blowjobs in the rain with smoky eyeshadow, in some over-romanticized Frenchified movie.

Perlongher's poetics go into the gutter and find amazing beauty - and often, beauty that ties sexuality to resistance to political oppression.

As perhaps you can imagine, the human rights of trans hookers on the streets are not a priority, say, to the police and government. If you are politically active in other areas as well, and you are gay in that context, there is not a lot of recourse for you legally and you are an easy target. But also, as a gay person in a straight world, you have particular survival skills and ways of acting collectively that come in handy during times of particular political repression. I think that is a good angle to keep in mind while reading Perlongher's work. Perlongher was an openly gay activist in Buenos Aires and in Brazil for gay and transgender rights. He also was around in the 80s and early 90s to watch everyone die. He is writes in a way that shows me he is aware of the violence and power imbalances in pornography and in the sex trade.

You see why I have come to love him dearly in the way that translators can love their poets who they have never known.

In the mean time his poetry is also wankery in the other, academic sense of the word, as in Baudrillard wankery, of spectacle and illusion and semiotics, the elusive and illusive web of meaning that surrounds absence & signs.

So, onwards to a snippet of poetry.

My disclaimer here is that I am super aware that in places I might just be dead wrong. And, the nonlinearity of the poem means that even if you understand every word in Spanish, you will be staring at the page wondering what the hell it means. (And, I considered every word's meaning in Portuguese as well, because he did double-triple meanings on purpose, or wanted words to evoke other words.) If you tell me I'm wrong and argue it and back it up, I will listen and be grateful for the help.

Consider this section from "Miché",

la travesti
echada en la  ballesta, en los cojines
crispa el puño  aureolado de becerros: en ese
vencimiento, o esa  doblegación:
de lo crispado:
muelle, acrisolando  en miasmas mañaneras la vehemencia del potro:
acrisolando:
la carroña del  parque, los buracos de luz, lulú,
luzbel: el crispo:  la crispación del pinto:
como esa mano  homónima se cierne
sobre el florero  que florece, o flora: sobre lo que
florea:
el miché,  candoroso, arrebolado
de azahar, de  azaleas, monta, como mondando, la
prístina  ondulación del agua:
crueldad del  firmamento,
del fermento:
atareado en  molduras microscópicas, filamentosos mambos:
tensas curvas

the trannygirl
        sprawled on the springs, in her cushions
        jerks the fist gilded with leather: in that
        conquering, or this submission:
                                        of that which jerks
elastic, refiningfined  in earlymorning miasmas the vehemence of the colt:
        refined:
        meatmarket of the park, holes of light, lulu,
        lucifer: the jerk: the shuddering of the pinto:
        like how that hand   homonym purifies itself
        on the flowery florist that flowers, or blooms: over that which
flourishes:
        the hustler, straightforward, blushing
        with orangeblossom, with azalea, like stripping bare, the
        pristine undulation of water:
        cruelty of the firmament, 
        of ferment:
busybusy in microscopic moldings, filamentous mambos:
curves tense

Okay, so, just consider that for a bit. I would love to publish the rest but I'll just wait on that for a while. But, if you were going to write a poem about handjobs without ever saying anything directly dirty, here is your model. If you read Spanish you may go and read the rest in the original. It is full of lube, pushing blunt heads, grease, drool, perturbing firmness, throats and petioles, oysters and curves, and shining above the grime and flesh, the sparkle and "authenticity" of gold lamé.

I'd love to talk some time about his poem about Camila O'Gorman. It seems to me to be a perfect encapsulation of a way that gay men see cinematic and tragic femininity. It is all melodrama and heroine and actress, mist and gauze, mixed with sex, death, and of course flesh and dirt. I read it and just can't believe how evocative and weird it is. It makes me think of the scene in Bataille's Blue of Noon where Dirty and the narrator are having sex and fall off a cliff in the muddy rain, or when they are messing with that priest's eyeball. But actually, sort of, the poem is about a 19th century pregnant teenager facing a firing squad. Where the rats and candle wax and worms come into this, I can't say, but they fit just fine.

I love reading Perlongher's poetry. Translating it is like being in poetic free fall. It is outrageously free and wild. It is maddening in its elisions. I could go on and on about it for a very long time, burbling.

Happy Poetry Month!

Talking with the city about ramps

After I sent a bit of an email blast to everyone in the city government I could think of who might be able to help, I got a super nice response. A city technician, Charlie, called me and left voicemail; I called him back and we met half an hour later outside my house. There could not be a nicer, more competent-seeming person. It was very reassuring.

We walked around and looked at the main obstacles to places I go often: the grocery store, the school, and my path to the train station. With 6-7 curb cuts, it would be workable. There was a large locust tree in the way of one ramp location. Charlie, who is also something of an arborist, said that the tree was around 5 years from dying anyway; it is split in a way that means a main branch should come off, and its core is dead. So it might should be cut down anyway. Still, losing a tree makes me sad.

I learned many other interesting things from Charlie as we walked (and rolled) the route and discussed tangential things like the city's history, street names, clues to former land use and the evolution of streetscapes.

The curb cuts cost the city about $5000 each.

As of last year, the standard curb ramp is a wide diagonal, heading both directions. It has texture to warn visually impaired people that a slope is about to happen. It has those yellow bumps at the edge to warn that you're about to be in the street. The texture also directs where the diagonal is, so you know not to go out into the exact middle of both intersections, but to choose one or the other. Behind the ramp, across the sidewalk, there will also be a sort of raised back curb, which signals the sidewalk's edge.

I found some excellent guidelines here on the Department of Transportation federal government site. It's especially good at explaining the different needs of different people; how power vs. manual wheelchairs have conflicting requirements that also conflict with cane/walker/crutch users and visually impaired people. It has a very cool table of best practices for access. Also, the illustrations of dismayed wheelchair users in section 7.3.7, Change of grade, are quite funny.

The streets Charlie and I looked at are fairly old. It is not a "Centennial" neighborhood quite, but I think more like the teens... My own house I believe was started in 1910. The many resurfacings since then mean that the street is raised in the middle from the curb and gutter, so the ramp construction will take the crown and gutter slope into account.

Charlie mentioned my other request for a stop sign, and said that Traffic and Engineering might take a while with that, so he would have his crew construct a base for it in the ramp, and put a cone over the base. If the stop sign doesn't happen, they grind down the base and fill it in. If they don't do that prep work, then someone will "drill a hole in my ramp" and possibly weaken it structurally.

Not to mention Charlie's other mission of training rednecks not to do u-turns on the curb ramps and not to use them as driveways. The weight and the sheering force does major structural damage! Now you know. It would never occur to me to do a U-turn onto a sidewalk. I did not ask about skateboarders...

The city contracts its sidewalk construction and repair out to a company called J & J. They have to have a certain amount of work to be done before the contractors will come and do it all in a batch. This had a particular name, but I have forgotten it. The contractors are in the neighborhood now, working, so might be able to do this; but might need to schedule it in October instead and to do that Charlie will likely have to find another batch of work to go with it. I am sure there's no shortage of things to be done.

The money for this comes from a pool of money for ADA improvements that the federal government gives to the city each year. I don't know how much there is total. Charlie described a project he was on that provided sidewalk access from Edgewood Road all the way to the Senior Center on Roosevelt. Not bad!

The alleys on my block also limit access to the main road behind our block, Jefferson. It is actually quite funny because there are very nice ramps and crosswalks all on Jefferson, but they lead you up onto a section of sidewalk that ends in a giant curb at the alleyway. I am not going to worry too much about the alleys. If I want to use the mailbox at that corner, I will drive to it or go across the street and down the block and across the street again.

Charlie and I also discussed the driveway slope. That is something I could pay half of and the city would pay half, to fix. For now I am thinking to just put a big heavy board there as a temporary fix so that my car will stop bottoming out and so that I can get down the driveway in my wheelchair.

Then we went into discussion of trees and City Trees. The city used to recommend crepe myrtles, and then banned them, and now doesn't mind them again, but since they push up the sidewalks the same as a big shade tree, they recommend you just go with the big shade tree. It helps houses be more energy efficient and it makes the city nicer for everyone. Big trees need 6 feet of planting space between the curb and sidewalk, and medium ones need 5. Our planting strip is narrow; about 2.5 feet. So, on streets like ours, the city does the 50/50 cost split, creates a sort of bump or bend in the sidewalk, moving the sidewalk closer up towards the house. The right of way is actually much greater than most people think, so, about 5 feet into our front yard is actually public land or right-of-way.

That was about 1 hour of my morning, and I took another hour to write it up. Time well spent.

I am very relieved that I don't have to fight harder for this. Also, I was grateful not to have to explain myself, the ADA, my medical status, or anything else, to Charlie, who took my right to use the public sidewalks as a given. What a great public employee and great person to work with.

Technorati Tags: accessibility, ADA, bay area

Hacking City Hall

My experiences with activism, and also my peripheral awareness of politically savvy friends, taught me some things that aren't automatic knowledge. In this case, I would like a 4-way stop sign at an intersection near my house. I would also like curb cuts -- sloping ramps from the sidewalks to the street -- at the busy intersections along my street, between the grocery store and the many apartment buildings and the two schools. And incidentally... to my house.

If you saw me in the street with my 7 year old at 8:15 am this morning you would understand a little bit better. It is hard for me to find a place to cross the street. The curbs and driveways are steep. Some driveways I can go up and down, and some I can't, especially if I'm tired and hurting. Meanwhile, my kid wants to walk next to me, but I won't let him, so I'm trying to herd him by shouting, and keep us both caught up, and teach him traffic awareness and how to cross the street, but while I'm in the street and we are separated by parked cars. Giant Hummers and SUVs driven by people talking on cell phones fail to stop when they see me, even when they're at stop signs, and they blow past me at 40 miles an hour while I'm out in the middle of the road going past parked cars with people getting in and out, parallel parking with vans full of kids. It's a nightmare because the drivers are careless and distracted and ill-tempered and inconsiderate. Because we don't have school buses in this district, everyone has to walk or has to drop off their kids on the way to work. The police circle the block, giving tickets to the worst offenders.

So, what to do? I need to be able to cross the street in my wheelchair! At an intersection! With my kid!

I looked up some addresses on the city web site and wrote a couple of emails months ago. When I realized that didn't have any result, I figured I'd go in person to City Hall and ask questions. Procrastination ensued. I continued wheeling my wheelchair in the street whenever I needed to get groceries.

After three days of walking my son to and from school during periods of very heavy traffic, I lost patience with the situation. A few years ago, I watched my friend Elaine work the machinery of the city, and her position as president of the Moms' Club, to get a stop sign at a busy intersection that was between her house and the local playground. It benefited everyone in the neighborhood. I saw her do very similar things to get shade structures and bathrooms in some of the local playgrounds! But if it were not for seeing her go through that political process, it wouldn't have occurred to me to do what I'm doing now.



So! I went to City Hall. I asked at an information desk who I should talk to about sidewalks, ramps, and stop signs.

Step one. I explained briefly what I was looking for at the information desk. The information desk person told me to go to Planning.

Step two: The guy at the Planning desk told me to go to the Public Works building. I asked him more pressing questions, and he responded that maybe I could talk to someone in Engineering, but that would not help and the people responsible were in Public Works (across town.) Since those were the people I wrote to in the first place who didn't respond and I didn't trust his information and I didn't want to pack up my wheelchair and drive across town and unpack myself into the wheelchair again, I told him I was going to go upstairs to the big sign I could see that said "City Manager" and "City Attorney" since I suspected there was some more direct path to action. He seemed mildly perturbed. I smiled with sharky politeness.

Step 3: On the way to the elevator, I told the information desk person #1 (nicely) that the person she had sent me to didn't know what I should do next.

Step 4: Upstairs, an information desk or reception person for the City Manager seemed to know what I was talking about and what to do. She looked up some information online, and wrote down a name and phone number and email of Rich, the Traffic Engineer, and his assistant Peter, who were just downstairs next to the Planning desk I had gone to in Step 2.

Step 5: Someone came to talk with me at the Maps and something-or-other desk after I waited a few minutes. I gave my two-sentence summary of what I would like. She asked if I had an appointment to speak with Saber. I said I did not, but I would like to wait and speak with anyone who could explain the next steps in the process to me. She said things that indicated everyone was very busy and went away. I waited.

Step 6: An engineer, Brendan, came out to talk with me. We went over to a low desk that was pleasantly wheelchair accessible, with a large, lightweight computer monitor that swivelled around. I explained to Brendan, and showed him my map of the 3 blocks between the grocery store, my house, and the school. On it I circled the places I wished for curb cuts, and the intersection that I think needs a 4-way stop instead of a 2-way stop. I asked Brendan what I should do next to request these things from the city, through official channels.

(Here is where I would not have known there *was* a way to do this sort of thing, if not for the local Redwood City Moms' Club and its email list, and my friend Elaine.)

(I would like to point out the many steps before this actually productive step; Expect delays, and uncertainty, and people who don't know what to do next or who to refer you to; Don't get mad at them, but keep patiently asking different people until you hit the good one who will say, "I don't know, but let's go find out.")

Step 6, continued: Brendan listened intently to my explanation. He said that I should do separate requests for the stop sign -- for which there was a known procedure -- and for the curb cuts, which no one understands, which take longer, and which will cost a lot more.

Then, Brendan he explained what I should do and what would happen next. I should write a letter to the Senior Engineer, Saber. I gave a feral grin and whipped out my computer. There was wireless. I wrote the letter and showed it to Brendan across the desk. He said it looked okay. I cc-ed the letter to one of the school principals and to my housemates, the only people on my block whose email addresses I know offhand.

Then I took notes on paper for what he said next. Here is what will happen and what I should do:

- Write a letter proposing the stop sign (done!)
- Write a letter proposing the curb cuts.
- The city will respond within a couple of weeks (someone is on vacation)
- Engineering will order a traffic analysis, just from the fact of my request letter for the stop sign. They will put those tube things across the street and do traffic counts, and I think they'll do a pedestrian count as well.
- Meanwhile, I must get signatures from the people living at the four corners of the intersection. Brendan called up an application that uses Google Maps, and we talked about how some of the buildings at the corners were single family and some were apartments and some were duplexes. The more signatures from those addresses I can get, the better.
- Also meanwhile, I must get signatures from people within a 1-block radius of the intersections.
- Brendan was aware that the neighborhood has many Spanish-speaking and Guatemalan/Salvadorean/Southern Mexico-native-language-speaking immigrants, so he advised me to make my petition bilingual and also warned me that people might be wary of signing things for various reasons.
- Meanwhile, a letter will go out from the City to everyone on the blocks near the intersection to explain the traffic analysis studies.
- Then, the engineer makes a recommendation to the City Council in a staff report.
- A public hearing will then be scheduled for the City Council to discuss the stop sign.
- It is important for people who want the stop sign (or curb cuts) to come to the meeting, because if only people who are opposed come, it might sway the council.

Brendan explained other issues in excellent detail. He called up fles on his computer, and swivelled the monitor around to show me the screen. The main thing we looked at was the list of criteria that the city considers in its recommendation: how many cars must flow through the intersection in an 8 hour period, but the ways around that as well; pedestrian count in smaller time units is considered along with average speed of cars going through the intersection. That was interesting! And useful! Brendan said he would find out if he could email me that document, and gave me his card.



We discussed strategy for the curb cuts a little bit. He mentioned again that they were quite expensive and he had never seen anyone request them, and so there might be a bit of confusion as well as reluctance from the city. But that there was probably money for it somewhere. "Well, I think there has to be, because of the ADA," I said in a friendly way. I hoped that would indicate my total willingness to work through their process, but would show that I am aware there are legal rights involved here, and laws that specify things like sidewalk accessibility. While I don't think we have to go there, it seems good to at least mention the law.

I have some good ideas. IN addition to pounding the pavement for signatures, I could go speak to a middle school class at both schools, and perhaps enlist help from a social studies or civics class. I could explain the process I went through, and get some older kids to knock on doors and get signatures. Then I will not have to do some much physical labor, and a bunch of kids will learn something about local political processes and how to effect small changes.

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